Assistance / Information Directory
ALZHEIMER’S DISEASE
Alzheimer’s Association
225 North Michigan, 17th Floor Chicago, IL 60601
Tel: (800) 272-3900
Website: www.alz.org
Alzheimer’s Disease Education and Referral Center (ADEAR)
ADEAR Center P.O. Box 8250 Silver Spring, MD 20907-8250
Tel: (800) 438-4380
Website: www.nia.nih.gov/alzheimers
Alzheimer’s Disease Research
American Health Assistance Foundation
22512 Gateway Center Drive Clarksburg, MD 20871
Tel: (800) 437-2423
Email: info@ahaf.org
Website: www.brightfocus.org/alzheimers/
Dystonia (Blepharospasm, Spasmotic Torticollis)
WE MOVE (Worldwide Education and Awareness for Movement Disorders)
5731 Mosholu Avenue, Bronx, NY 10471
Tel: (347)843-6132 | Fax: (718)601-5112
Email: wemove@wemove.org
Website: www.wemove.org
National Spasmodic Dysphonia Association
300 Park Boulevard, Suite 415, Itasca, IL 60143
Tel: (800)795-6732 | Fax: (630)250-4505
Email: nsda@dysphonia.org
Website: www.dysphonia.org
Dystonia Medical Research Foundation
1 East Wacker Drive, Suite 2810, Chicago, IL 60601-1905
Tel: (312)755-0198 | Fax: (312)803-0138 | Tel: (800)377-3978
Email: dystonia@dystonia-foundation.org
Website: www.dystonia-foundation.org
Spasmodic Torticollis ST/Dystonia, Inc.
PO Box 28, Mukwonago, WI 53149
Tel: (262)560-9534 | Fax: (262)560-9535 | Tel: (888)445-4588
Email: info@spasmodictorticollis.org
Website: www.spasmodictorticollis.org
Movement Disorder Society
555 E. Wells Street, Suite 1100, Milwaukee, WI 53202-3823
Tel: (414)276-2145 | Fax: (414)276-3349
Email: info@movementdisorders.org
Website: www.movementdisorders.org
American Dystonia Society
17 Suffolk Lane, Suite 1, Princeton Junction, NJ 08550
Tel: (310)237-5478 | Fax: (609)275-5663
Email: info@dystonia.us
Website: www.dystonia.us
Headaches and Migraines
American Academy of Neurology
Website: www.aan.com
American Council for Headache Education
Website: www.achenet.org
National Headache Foundation
Website: www.headaches.org
MULTIPLE SCLEROSIS
National Multiple Sclerosis Society
Website: www.nationalmssociety.org
Consortium of Multiple Sclerosis Centers
Website: www.mscare.org/cmsc/
Multiple Sclerosis Association of America
Website: www.mymsaa.org
Myasthenia Gravis
Myasthenia Gravis Foundation of America
355 Lexington Ave 15th Floor
New York, NY 10017-6603
Tel: (212)297-2156
Fax: (212)370-9047
Tel: (800)541-5454
Email: mgfa@myasthenia.org
Website: www.myasthenia.org
Parkison’s Disease
We Move (Worldwide Education and Awareness for Movement Disorders)
5731 Mosholu Avenue, Bronx, NY 10471 USA
Tel: (347)843-6132 Fax: (718)601-5112
Email: wemove@wemove.org
Website: www.wemove.org
Parkinson’s Disease Foundation, Inc.
1359 Broadway, Suite 1509, New York, NY 10018
Tel: (212)923-4700 Fax: (212)923-4778 Tel: (800)457-6676
Email: info@pdf.org
Website: www.pdf.org
Peripheral Neuropathy
Neuropathy Association
60 East 42nd Street Suite 942 New York, NY 10165 USA
Tel: (212)692-0662 Fax: (212)692-0668
Email: info@neuropathy.org
Website: www.neuropathy.org
Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030 Chicago, IL 60637
Tel: (773)702-5659 Fax: (773)702-5577
Website: www.peripheralneuropathycenter.uchicago.edu/
Foundation for Peripheral Neuropathy
485 Half Day Road Suite 200 Buffalo Grove, IL 60089
Tel: (847)883-9942 Fax: (847)883-9960 Tel: (877)833-9942
Email: info@tffpn.org
Website: www.foundationforpn.org
Seizures and Epilepsy
American Epilepsy Society
Website: www.aesnet.org
Stroke and TIA
American Stroke Association
Website: www.strokeassociation.org
NIH/National Institute of Neurological Disorders and Stroke
1P.O. Box 5801, Bethesda, MD 20824
Tel: (301)496-5751 | Fax: (301)402-2186 | Tel: (800)352-9424 | TDD: (301)468-5981
Website: www.ninds.nih.gov
National Stroke Association
Website: www.stroke.org